Aria

Congenital Pseudarthrosis of the Tibia South Carolina Dr. Herzenberg, Dr. McClure

Aria with her finishing medal from a race Aria’s mom, Helen, shares that when Aria was diagnosed with Congenital Pseudarthrosis of the Tibia (CPT), they were brand new parents and overwhelmed to be told she likely needed an amputation with no other options. “When we found RIAO, [Rubin Institute for Advanced Orthopedics], we were immediately hopeful and relieved.”

Aria was treated by Dr. Herzenberg and Dr. McClure. Helen shares, “Aria has no limitations since treatment and surgeries. She runs track and cross country at her high school, and she plays sports freely. She is so grateful to the team at RIAO for their skilled care and attentiveness to her needs.”

She continues, “The doctors and staff are empathetic, kind, and compassionate. They listen attentively to our concerns and offer options that we can take time to consider and choose. We feel included in the care plan and educated about the process.”

When asked what she would share with another parent of a child with CPT, Helen answers, “I would strongly encourage patients with similar conditions to seek a second opinion and treatment options at RIAO, even if it means traveling a long distance, like we do. The investment in care and the resulting outcomes far outweigh the cost and possible inconvenience.”

  • Aria as a young child lying down wearing an external fixator
  • Aria as a young child riding a rocking horse while wearing an external fixator
  • Aria as a young child sitting with an external fixator on her leg
  • Aria in her cross country uniform
  • Aria running a race on a track
  • Aria with a finishing medal from a race
  • Aria climbing a rock wall
  • Aria skiing