Sudan

Congenital Femoral Deficiency, Proximal Femoral Focal Deficiency (PFFD), Rotationplasty Pennsylvania Dr. Standard

Sudan was born with Proximal Femoral Focal Deficiency (PFFD), a rare condition that affects the hip and leg. His initial treatment elsewhere was not successful, and he came to the ICLL to have Dr. Standard perform a rotationplasty. With this complex surgery, the lower leg and foot are rotated 180° so the foot is positioned where the knee used to be, with the heel portion in front and the toes pointing backwards. Placing the ankle joint in the position of the knee creates a functional, natural knee. The foot then fits into a prosthesis. The end result leaves patients with greatly increased mobility compared to the more traditional above the knee amputation and prosthesis.

Sudan is definitely taking advantage of his increased mobility! His mom, Kimberly shares, “Sudan enjoyed playing sports this summer. He was on a baseball team, with all the kids his age. He kept up and was so happy to be out with the kids his age! He even scored some runs for the team! He was able to participate in field day at school and is perfecting his mini-golf game…. Sudan has loved being a boy this summer. He has done two weeks of overnight camping. He loves starting fires, playing Gaga with the boys, swimming, fishing and being in nature… [Sudan also did] a 2-mile steep hike. He kept up with the family and enjoyed the views from the top!””

Sudan has also been able to participate in band. She adds, “He is playing his favorite instruments in percussion which requires standing and moving back and forth. He has been successful and asked to join the honors band.”